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The following is an archived video story. The text content of that video story is available below for reference. The original video has been deleted and is no longer available.

Family educating others on Tourette Syndrome

BRIDGE CITY- by Haley Bull

Nine pills a day, a constant rotation of medications and a binder filled with records keeping track of Cameron Ellis are things his family has dealt with for years.

"I didn't really know what to think because I really didn't know what it was," Ellis said.

Doctors diagnosed the ten-year old with Tourette Syndrome about five years ago.

"A lot of people's question is well what is Tourette's? Well what does it do?," his mother Victoria Buchanan said.

It causes motor ticks for Cameron, making daily tasks like walking, schoolwork and sports more difficult.

"I keep on jerking my neck or my foot twists and I trip myself and my fingers draw up," Ellis said.

His family said they had to research the syndrome, that others don't always understand.

"People would be like what are you doing, why are you being such a freak, can't you stop it?" Buchanan said. "He would have kids that would push him, slap him, he'd come off the bus crying everyday, please don't make me go back, please, you know, I just want to be normal like everybody else."

"They didn't really understand. They didn't know what I had and just thought there was something wrong with me," Ellis said.

It's why his family said they want more people to learn about the syndrome.

"Hopefully we can find a cure for it and more awareness," Kevin Buchanan said.

"Sometimes I just feel like it's not gonna get better," Ellis said. But he's not giving up hope for himself or others. "If there's anyone else out there who has Tourettes, I just have hope for them that they can get better."

His family said they're working to bring a motivational speaker to Ellis' school so others can understand what Tourette Syndrome patients go through.

 

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